Everett. Is. ONE.
Unplanned pregnancy
2 perfect pregnancy ultrasounds
4 perfect pregnancy labs
Precipitous labor
Accidental free birth alone
Respiratory distress after birth
911 called
1 ambulance ride to local hospital NICU
CPAP
Undiagnosed LCDH + pulmonary hypertension + bronchial malacia
Intubation
1 ambulance ride to level IV nicu without parents
50% survival rate
2 self extubations
MRSA pneumonia
1 Surgery to get on ECMO
3 lung hemorrhages
5 bronchoscopies
20 days on ECMO
1 Surgery to get off ECMO
1 LCDH repair surgery
2 Pulmonary hypertension crisis
107 blood transfusions
10 infections
3 middle of the night phone calls
1 we donβt know what his future holds meeting
25 different medications
33 echocardiograms
106 procedures (X-rays, EEGs, EKGs, MRI, CT)
8 PICC line placement/removal/etc
50 IV infusions
14 days nitric oxide
1 experimental pulmonary hypertension medication not approved for babies
7 types of therapy
90 days TPN
14 days dialysis
23 dressing changes
22 NG/NJ placements
7 additional procedure
4 room changes
1 final self extubation
7 narcotic weans
1 CPAP
1 high flow oxygen
1 low flow oxygen
Pulmonary hypertension resolved/remission
5 months inpatient level iv NICU
One miracle child.
One year old.
Thriving.